I'd like to talk about a major issue in my life right now. It's a downer, so prepare yourself.
So, I'm poor. I know I have said that before but when I say I am poor, I mean we survived last year on less than $6,000 income. Like super poor.
And one would think, "Oh, you're taken care of by the state," but nope. If you don't have kids and you are poor, you can pretty much go fuck yourself... which apparently I have done by becoming ill while poor.
I have been chronically ill for about 8 years now. Longer really, but it has been steady for 8 years. I used to have a job, and I worked, and I loved working. I would even work for free, if they didn't have money to pay me because working was awesome and fun. But then I got sick and I had to go home from work all the time and had to ask people to cover for me, and my job was such that I couldn't just leave when I needed to... I had to wait for someone else to be there before I could go, so it sucked, and it made many people mad at me, and at the end of the year, I got let go. And the next year, my contract wasn't renewed. And then my day to day jobs stopped because I was making errors of judgment from being on pain pills that I was required to take... and then 4 years ago, I stopped working. I was making it through my days by refusing to eat or drink, because those things made me sick and made me have to go home, and working is hard when you have no food in you. I know models do it, but they just have to stand there and look pretty... they don't have to keep other people safe and alive and stuff.
And the point of telling you that I am poor is to tell you I have no insurance. I have no medicaid, I ain't got shit... except a bunch of chronic illnesses that like to make me miserable and a moral code that tells me it is wrong to run up bills and not pay them.
Beyond that, I have several diseases, all autoimmune, that don't have cures. My experiences with doctors has been this:
I am certain there is something actually wrong with me that hasn't been diagnosed, as far as my chronic pain and lessening muscle control, but I think I come off to doctors as a hypochondriac. I say this because I complain and I complain and they just look at me cross-armed and say "Mmhm." and nothing gets done.
I had one doctor lady stand across from me, when I was pleading that she do some test, test for MS maybe because it runs in my family and I have almost all the symptoms of it, and I was being told "we don't know what is wrong so we aren't going to do any more tests on you," please test me, for the love of God, test me, and she crossed her arms and her legs and said in a nasty accusatory tone, "Do you WANT to have MS?"
And you know, yeah, I would rather be diagnosed with MS when I have most of the symptoms of it anyway, and actually fucking be treated, than to sit in a room with shitty doctors who treat you like crap because you have problems that they don't have a name for. You get screwed because your symptoms are too hard to figure out and testing costs money and you don't have money, and people subsequently think you are making it all up, but you are in pain all the time and you know this is real.
So, I have tried to get help but all of the agencies say that there isn't enough documentation to prove that I am sick enough. Because when I am feeling my worst, I don't want to go sit in a doctor's office, or ER, for hours to tell them "I feel like shit, I am going to take some narcotics and lie in bed for the rest of the day. " Or "I feel like shit, I am puking and crapping and I can't stop." yelled through the bathroom door of the doctor's office because I don't relish the idea of wearing a diaper out in public. Or "Hi, my intestines are bleeding again. I have ulcers on every mucus membrane of my body. I can't sit up because it hurts so bad. You can't do anything about it because taking steroids all the time is going to kill me... so hi, bye, thanks for writing it down after I sat here miserable for 5 hours. That will be $500 I don't have. Please, make sure you call me every day to stress me about it which will make all of this flare worse."
And because it has been suggested that they can't do anything for me, it seems an exercise in futility to mention it. I don't WANT to spend every second thinking about being sick. I want to ignore it and do whatever I can to bring myself joy (like writing this blarg here, that I love, and interacting with all of you), but in order to get any help from any agency that is in place (disability, voc. rehab, etc), it seems that you can't have a moment of joy in your life, which is about how I feel right now. So, please, I can have help nao?